Light disease EPP: treatment of a genetic defect
Erythropoietic protoporphyria – EPP for short – is an extremely rare disease. The so-called light disease is triggered by a genetic defect and is usually transmitted to descendant generations. In Germany, around 400 patients are affected, although the number of unreported cases is much higher. They react with painful burns when exposed to sunlight for too long. Even artificial light sources can cause symptoms. As a healthy person, one can hardly imagine the agony and limitations that are associated with this.
In conversation with Dr. Esther Wißmüller
René Jacobs from the Academy of the Bavarian Press conducted an interview with a sufferer. The journalist also spoke with Dr. Esther Wißmüller from the dermatology department at Sendlinger Tor about treatment options and prospects for a cure. Read the article by René Jacobs here: When the sun becomes your enemy. If you are affected by EPP yourself or know someone who is, talk to us. We can help you further and work together with designated therapy centers.
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When the sun becomes your enemy
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